Peaceful Portugal

Leaving the UK and our comfortable lives behind, we pack up and head to Portugal

Go with the flow

This whole s**t scary topsy turvy situation had made us more than count our blessings.  Whilst trying to decide what we were going to do with our future Morley had follow ups with… Continue reading

Mayhem’s 1st Birthday

He had made it.  There were times when I feared he wouldn’t.  That the tumour would consume him, squish all of his vital organs and take control.  Dr Google said that a lot… Continue reading

Freedom

We had been in hospital for the whole of August and into mid September, 6 weeks.  We were ready to escape. Excerpt from email to family: ‘We’ve made it, escaped, we have have left… Continue reading

Finally a diagnosis…Teratoma

We were in ICU longer than we cared.  It was only a couple of days but it felt like a lifetime. Too long living on the edge. Back on the ward Mayhem was… Continue reading

ICU

The Intensive Care Unit (ICU) was a scary place.  Unlike the ward, with screams, shouts, hustle and bustle , ICU was quiet. No noise from the children entombed there, just mechanical noises and… Continue reading

Surgery

We had been waiting so long that we’d become complacent, the limbo of waiting became normal and we allowed ourselves to relax a little, beginning to ignore the fact that Mayhem needed a… Continue reading

Thymoma

Still waiting… An excerpt from an email to family on 24 August 2015, eleven days of waiting after the biopsy: ‘So our doc is pretty sure, but it’s not confirmed, that Mayhem‘s tumour is… Continue reading

Waiting for Biopsy Results…Yawn!!

The results weren’t forthcoming…in fact..they took blooming ages.  Waiting is sooooooo freaking frustrating!!!  As Mayhem only needed oxygen at night during the day we were pretty much left to our own devices.  Chaos… Continue reading

Tumour Biopsy

Thursday 13 August was the date of Mayhem’s first operation, a biopsy of the tumour.  The operation was scheduled for 9am, first in.  I stopped breastfeeding him at 6am and he wasn’t a… Continue reading