Finally a diagnosis…Teratoma

We were in ICU longer than we cared.  It was only a couple of days but it felt like a lifetime. Too long living on the edge. Back on the ward Mayhem was… Continue reading


The Intensive Care Unit (ICU) was a scary place.  Unlike the ward, with screams, shouts, hustle and bustle , ICU was quiet. No noise from the children entombed there, just mechanical noises and… Continue reading


We had been waiting so long that we’d become complacent, the limbo of waiting became normal and we allowed ourselves to relax a little, beginning to ignore the fact that Mayhem needed a… Continue reading


Still waiting… An excerpt from an email to family on 24 August 2015, eleven days of waiting after the biopsy: ‘So our doc is pretty sure, but it’s not confirmed, that Mayhem‘s tumour is… Continue reading

Waiting for Biopsy Results…Yawn!!

The results weren’t forthcoming…in fact..they took blooming ages.  Waiting is sooooooo freaking frustrating!!!  As Mayhem only needed oxygen at night during the day we were pretty much left to our own devices.  Chaos… Continue reading

Tumour Biopsy

Thursday 13 August was the date of Mayhem’s first operation, a biopsy of the tumour.  The operation was scheduled for 9am, first in.  I stopped breastfeeding him at 6am and he wasn’t a… Continue reading

T is for Tumour

So we weren’t going back to Blackburn and were admitted to Alder Hey K2, Cardiac ward.  A state of shock didn’t cut it.  Hubbie and I were in a fuzzy wuzzy alternate universe.… Continue reading

Alder Hey Children’s Hospital

On Monday 10 August we were taxied to Alder Hey by ambulance.  Our third trip in an ambulance in Mayhem’s short life (we had to be taken in after he was born at… Continue reading

Croup, Bronchiolitis and breathing problems…

This is the excerpt for your very first post.